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mymsviews.com
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mymsviews.org
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Story # 33... My Next Choice...January 29, 1999 Finally received my EMS unit, it only took 8 months... but who's counting! A PT came out to show me how to use it, she says it's the wrong kind! I'm going to an appointment at a PT department, hopefully next week to have them show me how to use this one until I can get the proper EMS unit. My improvements are staying the same, after I start using the EMS I'm expecting to see more improvements. The EMS I have now, moves my fingers ( my index mainly) and can bend up my wrists. It's strange to see my hand up in that position ( bent upward). Even though it's caused by an electrical impulse, I still get an uplifting feeling. (excuse the pun!) I guess it's hopeful feelings. My puff & sip chair is an experience, I know I'll get used to it but at present I don't like using it. It goes too fast. In the house it makes me nervous, on an open area it should be fun. My cat is staying clear!! Treatment and/or devices I'm looking into are the electrical wrist band from Enermed up in Canada. Here is a link to their website: http://www.intergate.bc.ca/business/enermed/device.htm It may improve my hands/arms. The Multiple Sclerosis Association of America (MSAA) is funding a study. I have more association with the MSAA than the NMSS. I have trust in the MSAA, compared to the other. The other is the antibiotic treatment. Their story or a story is at this website. http://heskco.com/karan/lifecare.html Life Care Systems/John Peterson I read something about this treatment while I was arranging for the Novantrone treatment, which was about 2 ( shoot, 3) years ago. Stayed with the Novantrone. What I'm finding out about this treatment and the doctor is, ( there's lots of people saying that it's a hoax.) I'm finding that it's NOT. They say that the Dr. committed suicide when the "Law" came after him because he was (Supposedly) cheating MSers and others. He didn't commit suicide, Here's part of an email from Gordon Hesketh, Karan's Multiple Sclerosis Info Source I had written him asking about this antibiotic hoax, here's his reply (with permission) concerning the doctor's suicide. ....The REAL story as I understand it "DR Steve Wechter was running this clinic and having genuine success treating people with MS and other diseases. His "opponents" had him shot and left for dead!! He did not commit suicide as it was reported, and he is in fact alive at LifeCare now (although he is still recovering from this "accident"). Immune Technologies is no longer operating because of this assault on his life. Furthermore, the supposed stories circulated by the press about his patients not getting well are not true as you would expect in this scenario." The antibiotic treatment, You have to be checked out for a certain bacteria, through a blood test. Than you're given high doses of a particular antibiotic. The drawback with that is, I have to go to Aurora, Illinois. Drawback meaning, travel. Flying would be the shortest way. (Haven't been in a plane in over 25 years! And being this disabled, will be an experience!) Talked with John Peterson, The main researchers for the antibiotic treatment. He's real convincing, extremely confident. Basically saying that MS is a bacteria NOT a virus. And it can be killed! He says he has lots ( can't remember the number) of recovery stores. MSers that are in my shape, that are walking now. He gave an example One day you'll be sitting somewhere, notice that a button is un-bottomed and start buttoning it without thinking! I asked about side effects. Nystatin protects from side-effect. It's an anti-fungal and also acidophilus supplementation is used/recommended. This is to prevent the overgrowth of Candida. He said that I would be tested every 6 weeks. The tests can be done at home, the results are sent to him so adjustments on doses of the antibiotic can be made, if any. It's my understanding that insurance will pay for antibiotics but I'm not sure about Medi-Cal, especially in this situation. ( not proven) It's obvious, that I won't be holding my breath, too see if they would! I'll go through the process, see what happens! When I had asked about cost, which is about $800., he also said that I could make payments. (a personal thought, if this guy is planning on hustling me or anyone, I would think that "making payments" would be the farthest words from his mouth!) The $800 is for the lab work mainly. I asked why this wasn't made public. He said that none of the "Societies", MS Society, MS Foundation (don't remember the rest) didn't want to bother. They weren't interested. I did mention to talk with the MSAA, their attitude is lots more appealing than of the MS Society! Remember...I was completely ignored and blown off by the MS Society when I asked about mitoxantrone which has been tested starting in 1985, which was finally presented at the Stockholm Conference, Sept. 98!! He also said that they were going to be publishing their results in about 2 months. So, we'll see! As before, I'll keep you posted... it's hard for me to give up on anything, for very long. Especially if I see merit. I want to thank the people that wrote me with encouragement, thanks and their prayers... that means a lot to me.... THANK YOU...
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