This could turn out to be exciting news for the United States and MSers world wide after the Conference in Sweden.(one doctor is Gonsette, passed studies with him has been once every 3 months, mitoxantrone alone) The treatment I'm doing (a form of the treatment) will become OFFICIAL! Hopefully the FDA won't drag their pens. It's plausible this treatment could become available here, sooner than their standard 3 to 5 years.

The research has been done, over and over,starting in 85,enough is enough. I'm hoping also that the studies were using CP MSers (usually not the case) it would give people like me HOPE. Most of the MSers I have phone conversations with are CP, ages rang from 32 to 48, they live in Santa Cruz. 3 have been put in Institutions this past year. 2 of those are in the one I was in.(Which has changed names again!) That's not a happy thought.

I'll now be doing 20mg Novantrone ( I'll get used to saying that instead of mitoxantrone!) every 3 months and 1gm Solumedrol monthly. Haven't had Medi-Cal approve the EMS yet, as I've said, What's new about that! My exercising has slowed to a snails crawl, Between heat, stress, depression and lack of exercising my body isn't responding as it was. My left hand isn't opening as easily while laying down, the index and middle finger are but the other two aren't responding as well. My right hand and arm are fine. Still able to scratch my eyebrows and right ear, with this heat and other stuff that's going on, that's great. And I'm still tapping my index to music! (Drives Shawn nuts,transfer person. I listen to Classical music in the morning, he's 23!) I'm finding that when I sleep too warm at night, I can't tap my finger as easily in the morning ( heat and stress are a bad combo!) Hopefully with this Conference, exercise, massage and EMS will be mentioned (with drug conferences, probably not) and become accessible and standard, especially with MSers that haven't moved because atrophy has set in. It's an absolute must with this treatment and any treatment for the matter. Bladder function is more frequency lately or not enough (could be related to heat (?)) Bowels still every 3 days. Feet are swollen, (Heat related) but still not hurting. Energy and stamina are great, still taking my naps, as I've said, it's more out of boredom. When I get that puff and sip chair, who knows! I'm having a friend widened the ramps outside, I don't think that precision will be as accurate with this chair, compared to a manual, I don't want to take a nose dive! And...I don't have that metallic taste, finally.

The MS Conference will be held at: