Immunoglobulins  Update...

 This is bad news! It sounds like I won't be able to get Immunoglobulins (IVIG) which I'm realizing is an important aspect of this treatment.

1. It's extremely expensive. There's a recall of some sort going on, I'm not sure what the exact reasons are.
2. Hospitals have access to immunoglobulin but my Doctor doesn't, which means, COST. I can't afford a hospital stay of any kind and Medi-Cal (State Insurance) won't pay.
   

I'll continue with the mitoxantrone and steroids while I try to figure out how to get the immunoglobulin. Doing the mitoxantrone at 5mg per week should improve my situation more so than 20mg per month I can't really explain my reasoning behind that statement but that's what I believe. I'll continue to use the steroids of course, at a smaller dose. Dr. Pomeroy will be putting a "Port" in my chest ( sounds terrible but it's not!) that's a small pad (sort of) with an IV permanently in a vein so they can give me my weekly treatment without having to search for a vein. My veins are entirely to small for a weekly Treatment. I'll be doing the steroid also at a smaller dosage.

With exercise and a "TENS"(Transcutaneous Electrical Nerve Stimulations) Unit. It sends small electrical impulses through electrodes placed on the skin to underlying nerve fibers.TENS gives electrical stimulation to the nerves. I hope to be getting this after I go through the "Tap Dance" for Medi-Cal to pay! If they won't, it's just another thing for me to figure out!! (Geez, sounds familiar!)

The TENS unit alone should help! It's beyond me, why this unit isn't Automatically supplied to anyone with MS that is starting to feel their body tightening. WE would be walking and/or using our arms for a longer time, have less spasms, less stiffening, less cramps, which would mean NO DRUGS! At least not as soon as they are prescribed. I guess that would be called "Preventive Medicine", that's not a popular word in most medical arenas!

I'll be doing my next treatment June 15th and arranging for the "Port". After the initial installing of it, I'm sure I will appreciate it. One poke of the needle everytime! Believe me, I will like it or at least get used to it...

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