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| | René Part 12 December 23, 1997
FINALLY... started the Solumedrol with the Mitoxantrone!
Treatment went well, not counting the hassles trying to find
a vein. Mine are extremely small, making it hard to find one
that will rise enough and not get "Blown",Cathy, the woman
administering the IV was starting to feel badly because of
one vein that was blown and having to stick me 3 times.
(If you'll remember my MUGA scan!) I told her it's ok,
3 times was just getting started!!
When I got up this morning, I made a point of having a leg
warmer put on, covering my complete arm trying to keep the
warmth of my body temperature when sleeping the night before.
I covered myself from head to toes as much as possible, the
morning temperatures have been in the 30s! Not a real pleasant
situation, (for me at least) real cold weather makes my body not
move, everything tries to pull inward. Allen had to do most
of the steering of my electric chair, my arm just didn't want
to go outward to hold on to the controls for steering.
My appointments have been for 9:15 a.m.. With me taking
Solumedrol now, I'm changing the appointments too 1:30 p.m.
I'm hoping this added stamina will stay during my treatment
days,( and other days!) than I won't miss my nap!
I have been taking a nap at 1:30 p.m. for over 8 years.
At the beginning I could transfer myself into bed, about 5 years
past, I started having someone transferring me... so this is a treat!
-- I don't know what to do with these extra afternoon hours --
During the treatment the nurse said that steroids were usually
given to men all at once and women were given with an IV drip!
I thought that was interesting. She also said the main side-effects
were pelvic pain or discomfort... I had slight pain and my back
is aching a little, but that's probably from not taking my nap!
My exercise plan is together, 5 days a week, like clock work!
I've hired a good person, on time and into the therapy. She's
energetic and hoping for the best, Noticing any changes!
We'll see what develops with Solumedrol added to the
mitoxantrone. Just with the mitoxantrone, exercise and ROM
I've noted improvement!
Now -- doing the complete treatment should start to show
more improvements (4 to 6 months) that are recorded in the
mitoxantrone and methylprednisolone (steroids) studies that
I'm following.
...Wouldn't that make a nice Christmas and New Year...!:-)
Here's hoping you all have a
****** Merry Christmas and Great New Year******
René
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