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mymsviews.com
mymsviews.net
mymsviews.org
Where you will find
mymsviews.com
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| Wow!!!! Cool Beans!!!
You really want to know about me?
Hi and Welcome to my little place in cyberspace. My name is Carolyn. When I began this site in 1997 I was also known as Oishda or Falcore anywhere I dialed in via modem, telnet or PPP. On AOL I was known as Oishda or BhostOish, one of many facilitators for the MS (Multiple Sclerosis) Online Chat groups in the Better Health area of AOL. As of 2000 I left that position. I also kept a mailing list which I had used to keep the AOL MS community up to date on happenings there. Now I am trying to focus more on this site. If you want to look me up on AOL my screen name is MSHarleyChick or IamOishda, Since Multiple Sclerosis has entered my life it has gone through many changes (my life that is). Some of these changes good some not so good. Learning to live with any chronic disease is a challenge, but one that can be overcome. One of my goals is to help others learn to adjust as I have and perhaps avoid a lot of the hassles I have experienced. I was told long ago "everything happens for a reason" but sometimes that's hard to swallow as many of us know. There were many times I asked myself "What could possibly be the reason I have this sometimes crippling disease?" or "How can this possibly contribute anything positive to my life?" Well I think I have found my answers to those questions now. Over the years I have met some very encouraging mentors. Everything we encounter in life makes us who we are... How we choose to deal with these things creates the people we are.
Everyone has challenges in life. The key is to overcome them. Humans are great because we can adapt to anything once we put our minds to it and use our ingenuity. I don't see my self as disabled nor handicap (I hate that euphemism with a passion), I have MS and it has crippled my body to some extent at various times, BUT my mind works just fine thankyouverymuch. So why is this crazy lady spilling her guts on the Internet you may ask yourself? This is why.... Over the years I have hit many a dead end when it came to looking for information and support. Through my encounters with others, I quickly found I was not alone. My dream is to see a collective of resources easily accessible to everyone. MS not only takes it's toll on the person who has it, it also takes its' toll on our families, friends and loved ones. The best way to overcome is through education and mutual support. The more of us out here sharing our knowledge, experience and information the better we all benefit. After all nobody cares more than we do about ourselves so who better to look out for us but us! One of the big myths I quickly outgrew was "Doctors know everything, you don't question your physician" WRONG! Question everything and do your own search for the answers as well! Multiple Sclerosis is a constant learning experience. Take responsibility for your care. If you have questions ask them. If your doctor is put off by this, then it's time to find a new one. It can be very tough to find a Good Neurologist but, they are out there. Remember these health care professionals are your employees, no different than hiring a painter, plumber or electrician. Just because they paid big bucks to go to school doesn't mean they don't make mistakes just like everyone else. The unfortunate thing is that usually others pay for these mistakes. Make sure your doctor is up to date on all the latest. Ask what affiliations he has, look for accreditation's, find out what research he is involved with. Make sure he didn't stop learning when he got his diploma. And above all make sure he knows that with MS most of it isn't "by the book"! You're probably saying "Wow this gal hates doctors" WRONG again! Actually I have a great deal of respect and admiration for GOOD doctors. I can only imagine the frustration after years of learning and internships and residencies how frustrating it can be. Here you are all psyched up, you have your degree and you want to help everyone you can. Yes you know the symptoms, you have the tools to diagnose and yes you can try to help improve your patients quality of life to the best of your ability but, along comes the MonSter! Where did it come from? Why is it here? What caused it? Now you have theories and hypothesis but no true answer and most sadly no cure. That's gotta BITE! So please don't think I am anti doctor. I love and respect my Neurologist and I value his input. We work together on issues pertaining to my living with MS. That's the way it should be. And Finally......yes I am almost done :-) Now that you've got a basic idea about what this is all about.. I hope you find valuable resources from my little place in cyberspace and I wish you Empowerment.... I can only hope you may have found some value in my efforts, some answers to your questions and some footholds up the mountain of knowledge! Thank you again for taking the time to read this. Please know you are not alone and there are many people willing to help and support you through your quest to learn to live well with MS. Most of all Remember AtTiTuDe IS EvErYtHiNg Hugs and Love Oishda
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